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Ehlers-Danlos Syndrome

Understanding Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders that affect the body’s collagen, which provides strength and elasticity to skin, joints, and blood vessels. Because collagen plays such an essential role in the body, individuals with EDS may experience a wide range of symptoms including joint hypermobility, fragile skin, chronic pain, frequent injuries, and delayed healing.

There are several types of EDS, with hypermobile EDS (hEDS) being the most common. Although the severity and specific symptoms can vary from person to person, many individuals face daily challenges related to pain, instability, and fatigue. Early diagnosis and appropriate management can make a significant difference in long-term health and quality of life.

Common Symptoms and Challenges

People living with Ehlers-Danlos Syndrome may encounter a combination of musculoskeletal, neurological, and systemic issues. Some of the most frequently seen symptoms include:

  • Excessively flexible or “loose” joints, often leading to frequent sprains or dislocations
  • Soft, stretchy, or fragile skin that bruises or tears easily
  • Chronic joint and muscle pain, often worsening with activity or prolonged standing
  • Poor wound healing or scarring
  • Digestive issues, headaches, or dizziness from autonomic dysfunction
  • Pelvic floor dysfunction and related complications

Because EDS affects multiple body systems, many patients see different specialists before receiving a correct diagnosis. Physical therapy plays a vital role in helping manage these symptoms and improving stability, strength, and daily function.

How Physical Therapy Can Help

At Rebecca’s Physical Therapy, we understand the unique needs of individuals with Ehlers-Danlos Syndrome. Our goal is to provide gentle, evidence-based treatment strategies that help protect the joints, improve mobility, and reduce pain without causing further strain or injury.

Our therapists carefully design customized exercise programs that focus on low-impact strengthening, joint stabilization, and postural awareness. Manual therapy techniques are adapted for individuals with connective tissue fragility to avoid excessive pressure while still supporting mobility and pain relief.

In addition to hands-on treatment, we provide patient education on pacing activities, ergonomic modifications, and strategies for preventing joint injuries. Empowering patients with knowledge and practical tools is one of the most effective ways to support long-term health and independence.

Specialized Treatment Approaches

Because Ehlers-Danlos Syndrome can affect multiple body systems, a tailored and thoughtful approach to care is essential. Some of the specialized treatment methods we may incorporate include:

  • Gentle joint stabilization exercises to improve strength without overstretching tissues
  • Neuromuscular reeducation to help the body develop better control and coordination
  • Soft tissue techniques applied with care to reduce pain and improve circulation
  • Balance and proprioception training to reduce falls and injuries
  • Pelvic floor physical therapy for individuals experiencing pelvic dysfunction or pain

Every treatment plan is created with the patient’s comfort, safety, and personal goals in mind. We collaborate closely with each individual to ensure progress happens at an appropriate and sustainable pace.

A Supportive, Patient-Centered Environment

Living with Ehlers-Danlos Syndrome can be physically and emotionally overwhelming, but you don’t have to face it alone. Our clinic provides a calm, supportive environment where patients feel heard, respected, and cared for. We understand that EDS is a lifelong condition, and our role is to help you build strength, protect your joints, manage symptoms, and improve your overall quality of life.

Whether you’re newly diagnosed or have been living with EDS for years, our team is here to provide compassionate, personalized care every step of the way.